Showing posts with label cystic fibrosis. Show all posts
Showing posts with label cystic fibrosis. Show all posts

Monday, May 13, 2013

MOW HAPPY CHILD – Introducing MOW’s latest program



First and foremost, we would like to THANK all our DONORS for your support of our projects and activities, be it through contribution in cash, materials or volunteer time. We have grown through leaps and bounds, and this is attributed to the strong support we have been getting from our DONORS and VOLUNTEERS.

We are happy to share the good news with all our SUPPORTERS that we have embarked on a new program, called MOW HAPPY CHILD. The objective of MOW HAPPY CHILD is to provide support to terminally or chronically ill children from under-privileged families. The support can be in the form of sustenance and medicine, to enable the child to have a better quality of life.

Siti Nurmaisara, who has cystic fibrosis is our first MOW HAPPY CHILD recipient. Click below to read more on Siti's case:

http://mealsonwheelspenchala.blogspot.com/2013/04/mow-food-bank-family-with-sick-child.html



We will be recruiting more suitable children for our MOW HAPPY CHILD program, and we will keep you posted.

If you wish to donate to MOW HAPPY CHILD general fund, please contact June at 03-77849002 or Kim at 012-3036019 or email trccpenchala@gmail.com.

Donations in cash/cheque can be deposited into our account (Acc Name: Ti Ratana Community Centre Penchala, CIMB, Acc No: 14660000259057).

Please email the bank-in slip to trccpenchala@gmail.com and specify in the email the funds is for MOW HAPPY CHILD. 

Important to understand our direct cash policy to the recipients
MOW HAPPY CHILD program is set up solely for the intention of giving support in nutrition and medicine only, as such we do not encourage cash/cheque to be given directly to the recipients. This policy by Meals on Wheels Ti-Ratana is created so that  we can manage the donation by keeping you updated on how your contribution is spent and to avoid abuse of the donation.

In the event you wish to donate cash/cheque to them directly for other expenses and other usage you are most certainly welcome to do so but we will not be in the position to manage and report on the donation.

Thank you in advance for your support in helping MOW HAPPY CHILD recipients have a better quality of life.



Posting and pictures by Kim



Tuesday, April 23, 2013

MOW HAPPY CHILD - UPDATE ON SITI'S DONOR LIST & A GET WELL SOON CARD TO SITI BY DATIN SERI TIARA JACQUELINA



Siti Nurmaisara, 9 years old, suffers from cystic fibrosis which is a progressive, lifelong condition, in which the glands that produce mucus, sweat and intestinal secretions do not function properly. Thick mucus accumulates in the lungs, leading to breathing difficulty and infection. It also impairs digestion, which makes it difficult for Nurmaisara to get the necessary nutrients to grow. There is no cure for cystic fibrosis, but supportive treatments are available to help improve quality of life.

After our posting on Siti's plight, we received contributions from many donors, including Datin Seri Tiara Jacquelina.

Datin Seri Tiara's representative visited Siti at her home in PPR Gombak Setia on 22nd April and delighted Siti with 2 tins of Peptamen Junior (they wanted to buy more but most pharmacies do not stock this special milk because of its short shelf life, and they only managed to buy 2 tins), a personalized get well soon card and a cheque donation.


Get well soon Siti! personalize card for siti by Datin seri tiara





Hazlee, representative of Datin Seri Tiara presenting the milk, cheque and card to Siti & Fazilah.







Siti holding the donation & personalized get well soon card from Datin Seri Tiara Jacquelina.



click the youtube link to view Siti's Mother, Fazilah, sharing the complications of Siti's illness and expressing her appreciation to Datin Seri Tiara Jacquelina.
 http://youtu.be/5y5epuXgxVs

We would like to thank all our generous donors who have come forward to support Siti and her mother, Fazilah.


1. Albert Quay  - RM200
2. Alex and Adrian Lee - RM780
3. Datin Malina Su  - RM1,000
4. Ms. Mala   - RM200
5. Dr. T.C  - RM300
6. Pn Sri Cecilia Lim - RM300
7. Zainal Amar  - RM250
8. Joseph Thambirajah  - RM500
9. Dr. Rabin - RM300
10. Lim Chin Kah - RM200
11. Norenshah-RM300
12. Datin Seri Tiara Jacquelina - RM1,000
13. Ti-ratana MOW regular donors which we have potion out their donation for this cause.


Posted by: Kim
Pictures and video courtesy of Datin Seri's representatives.

Thursday, April 18, 2013

MOW HAPPY CHILD - Update on Siti Nurmaisara

It has been a week since we posted the blog about Siti Nurmaisara, one of our MOW Food Bank family's child with cyctic fibrosis. Many things have taken place during this one week, but the good news is that Siti was discharged last Thurs, 11 Apr, and is finally home after more than 2 weeks in the hospital. Actually she was discharged on Wed evening, but because of the heavy downpour and flash floods in downtown KL, the mother was not able to get a taxi. Fortunately, there was an empty bed in the Paeds ward, and the nurse kindly allowed them to stay another night. I gave them a ride home on Thurs morning as I had some personal matter to attend to at the hospital on that day.

We stopped by a petrol station on the way to Siti's house in Gombak, to get muffins, buns and soya bean milk as they have not had their breakfast.

In the past week, many good samaritans came forward offering their support for Siti in various ways. In particular, Dr Teresa and Dr Patrick who offered to contact Nestle, the supplier of Peptamen Junior, the milk which Siti needs to consume for her sustenance, to put on weight and grow, to build immunity and less susceptible to infection, be well enough to attend school and allow her to lead as normal a childhood, as a child with cystic fibrosis can. Nestle has kindly donated 4 tins of Peptamen Junior, which were delivered to Siti at the PPR flat on Friday (12 Apr) .... Siti was sooooo HAPPY as you can see from the pictures.


We have also received cash contributions from the following kind and generous donors. The amount collected will be used to buy the milk, which is Siti's staple food, for the next few months.

1. Albert Quay  - RM200
2. Alex and Adrian Lee - RM780
3. Datin Malina Su  - RM1,000.00
4. Ms. Mala   - RM200
5. Dr. T.C  - RM300
6. Pn Sri Cecilia Lim - RM300
7. Zainal Amar  - RM250
8. Joseph Thambirajah  - RM500
9. Dr. Rabin - RM300
10. Lim Chin Kah - RM200
11.Norenshah-RM300
12. Ti-ratana MOW regular donors which we have potion out their donation for this cause.

On behalf of Siti Nurmaisara, we would like to say a BIG THANK YOU to Dr Teresa, Dr Patrick, Nestle and all the donors who have so quickly come forward to help in response to Siti's plight. Siti's family is grateful for your care and support.


Posted by: Kim
Pictures from Kim

Saturday, April 6, 2013

MOW HAPPY CHILD - Family with sick child needs help

One of our MOW Food Bank family recipent, Fazilah Mohd Yusof's youngest daughter has been hospitalised at the pediatric ward in KL GH for almost 10 days with a very bad lung infection.

Siti Nurmaisara, 9 years old, suffers from cystic fibrosis which is a progressive, lifelong condition, in which the glands that produce mucus, sweat and intestinal secretions do not function properly. Thick mucus accumulates in the lungs, leading to breathing difficulty and infection. It also impairs digestion, which makes it difficult for Nurmaisara to get the necessary nutrients to grow. There is no cure for cystic fibrosis, but supportive treatments are available to help improve quality of life.

I visited Nurmaisara at the ward this afternoon. I brought chicken rice lunch for the whole family as her other two daughters were also at the hospital since its Saturday and they are not in school. According to Fazilah, Nurmaisara is recovering from the lung infection but is still getting antibiotic treatment intravenously through her chest.




Fazilah herself looks exhausted from the long hours caring for her daughter, including sleeping at the hospital at night. She has two other school-going children whom she needs to care for, including cooking their meals. She does not have a regular paying job as she has to look after Nurmaisara, almost full-time. Her eldest daughter in Form 5 relieves the mother in the hospital on some nights, so that Fazilah is able to rest. The bus fare from her house to the hospital is RM2.50 one way. So between the two of them, bus fare works out to RM10-RM20 per day, depending on how many trips they make to the hospital. Although the transport cost puts additional stress on the RM400 she gets from the government social welfare in lieu of the youngest daughter's illness, this is just short term.


The more pressing issue is the cost to care for Nurmaisara long term. Because of her impaired digestive system, most of what she consumes pass through without much being absorbed, which means she goes to the toilet about 10-12 times a day!!! Doctor has prescribed a special milk called Peptamen Junior which helps in cases of malabsorption. She is currently being fed Peptamen in the hospital, 4 times a day with 4 scoops of milk powder in each serving. With this, Nurmaisara only goes to the toilet once a day.


Fazilah is now worried about how she is going to sustain her daughter on Peptamen once she is discharged from the hospital. A quick check at a pharmacy in Damansara Uptown indicated that the small tin above cost RM78 (I only saw this at the pharmacy. Not sure if there is a Junior version). With her current consumption, it will be almost a tin a week, or about RM300 a month.

If you or your friends know of anyone in Nestle from whom we can buy the milk at a discounted price, or if you would like to help Fazilah by donating Peptamen, regardless of how many tins, please contact June at trccpenchala@gmail.com or call Kim at 012-3036019.

On behalf of Fazilah and Nurmaisara, we would like to say a BIG THANK YOU in advance for your generous support.


Posted by Kim
Pictures courtesy of Kim